Fund Payel's Kidney Cancer Surgery For Rare Disease Vhl

by Payel Bhattacharya

Rs. 20,841

raised by 10 people

6% funded

Rs. 3,00,000 Goal
    • fund payel's kidney cancer surgery for rare disease vhl
    • fund payel's kidney cancer surgery for rare disease vhl_295
    • fund payel's kidney cancer surgery for rare disease vhl_306
    • fund payel's kidney cancer surgery for rare disease vhl_307
    • fund payel's kidney cancer surgery for rare disease vhl_308
    • fund payel's kidney cancer surgery for rare disease vhl_309
    Invite Friends

    Description

    VHL Von Hippel­Lindau (VHL) disease is an asymptomatic disorder in one of my routine scans I've been detected malignant renal cell carcinoma. I needed funding to save my life.
    kindly help me for my treatment with kidney cancer.

     partial nephrectomy of left renal upper polar tumor with Malgnancy

    funds donated wil be used for my surgery.
    theres no ngo or government support it's tough to survive within a rare cancer

     

    http://www.hindustantimes.com/india-news/with-nine-surgeries-delhi-woman-fights-rare-disease/article1-1254150.aspx

    With nine surgeries, Delhi woman fights rare disease

    • Rupesh Dutta, Hindustan Times, New Delhi
    •  | 
    • Updated: Aug 20, 2014 05:04 IST
    • Life could not have been more cruel to Payel Bhattacharya, a patient of Von Hippel-Lindau (VHL), a rare autosomal genetic condition that predisposes individuals to benign and malignant tumours. The 34-year-old, who has already undergone nine surgeries, is still suffering as the tumors continue to spread in her body-and the medical costs spiral.

      Bhattacharya, who has three tumors in her brain and several others in her pancreas, has now turned partially blind as the tumours have spread over her eyes.

      Bhattacharya, who lives with her widowed mother at Hauz Rani, an urban village in south Delhi, is being supported by her Mumbai-based brother. But her brother's earnings too are becoming insufficient for her treatment, with her condition deteriorating day by day.

      "Owing to the lack of financial resources, my chances of recovering from my problems seem bleak...but I have the right to life, health and peace...social support and worthies to come forward is necessary for my survival," Bhattacharya told IANS.

      According to health experts, tumours in VHL become cancerous in the later stages and spread to other body parts through lymphs or blood. With the tumours in her body mushrooming and affecting many of her vital organs, Bhattacharya has been undergoing treatment by several organ specialists, whose expenses run into thousands of rupees every month.

      "Living with such a rare asymptomatic genetic disorder called VHL has made my life a constant battle to keep between the shores; not knowing what's in store. Due to involvement of multiple organs, different doctors look after the symptoms. This is itself a challenge for me and my family due to the expenses (involved)," Bhattacharya, who is fighting her condition bravely, lamented.

      According to health experts, Bhattacharya's situation is a severe one, especially due to the complexities associated with the management of various types of tumours and the multi-disciplinary treatment involved.

      "As the disease is genetical, the tumours can't be stopped from mushrooming. Only surgeries can help remove the tumours," radiologist Harsh Mahajan, who has done the radiology imaging of Bhattacharya's tumours, told IANS. He said that in such situations, a patient cannot be cured. "However, her condition can be kept under control and the tumours can be stopped from growing bigger through continuous medication," he said.

      "Medical processes like radiology, followed by their treatment to stop them from spreading involve high costs," added Mahajan, a former president of the Indian Radiologist Imaging Association (IRIA).

      Apart from the troubles confronted by Bhattacharya, one of the the biggest problems she faces is that every time a new tumour grows in her body, she has to consult a new specialist.

      "This only means added expenses-to test and diagnose the damage caused by the tumours," she said. "Surgery is a life-long requirement in my case. The only approach to tackle the disease includes surgery or radiation. I have been diagnosed with multiple tumours in the brain and thyroid and urgently need surgery to battle the complication arising from VHL," Bhattacharya added.

      VHL, being a rare disease, is found in one among 36,000 people. Due to the scarcity of such cases, even the government does not have any statistical records.

      Aditya Gupta, senior neurosurgeon at Medanta who had conducted one of Bhattacharya's surgeries, said, "The prognosis for those with VHL depends on control. Those who go untreated will develop blindness and even brain damage and will ultimately die from complications. Her (Bhattacharya's) situation is no different."

      He added that those treated, especially those who are diligently monitored and have lesions removed while still small, have better chances of survival.

      "Payel's condition, even though not curable, can be improved by careful monitoring and medication which requires high cost," Gupta told IANS.

      Calling VHL one of the least known diseases among people across the globe Gupta said, "Payel needs support-both mental and humanitarian-which will help her gain the will to live.

      "The non-existence of charitable groups and NGOs working for the cause has made any research so far untested. People need to understand that such patients need help so that they can live life like others," Gupta added.

      Payel's mother, Mrs Banani Bhattacharya, has appealed for financial assistance for her daughter, who can be reached at 91-9711197537.

    Willem Dafoe talks about VHL

    http://vimeo.com/118914870

    Report this Page
Rs. 20,841

raised by 10 people

6% funded

Rs. 3,00,000 Goal
pledge-icon1 Get involved! Create a Support Campaign and invite your friends and family for contributions.
TOP

You're sending a message to...

Payel Bhattacharya
Gurgaon
Name
Email
Message
Change Security Code

   
Name
Email
Message
  Change Security Code

   
A campaign with the "Verified badge" indicates that only the identity of the campaign organizer has been established by FundDreamsIndia. We, however, cannot guarantee that the funds donated by you would be utilized in a manner that it meets your expectations. Please use personal judgement before donating for any cause.

The "Verified Badge" should appear below the "Goal Amount" on the campaign page and not anywhere else. We don’t accept campaign verification requests from the campaign organizers as such. If we feel that your campaign falls under our criteria for getting “verified”, we may reach out to you.
Close Congratulations !!
Your Campaign "Fund Payel's Kidney Cancer Surgery For Rare Disease Vhl" has been posted successfully.
What to do now that you've gone live
  • Share to update your friends, family and colleagues about your campaign
  • Share
         You can track your progress using the Campaign Insights tab of your Campaign Dashboard.

Selected Reward